Mum pointed out the article and you laughed, ‘I do not have Motor Neuron Disease!’ Unfortunately, Mum was right. You were given six months to get your life into order. You asked me to tell your son Robbie of your terminal condition. I never told you how Robbie broke into a sweat. Red in the face as he asked [me], ‘Why Dad? How long does he have to live?’
When the neurologist asked about family history, why didn’t we think of Nani Collier on Mum’s side? Remember the stories? Her hand, shaking with Parkinson’s, trying to steady her cup and saucer while her mokopuna would laugh – ‘long tea or a short tea Nan?!’ Does not seem so funny now.
You married young but married right. Debbie loved you and you were a wonderful Dad to Jason and Robbie. And when Lil G was born, your eyes lit up! You couldn’t speak! But you watched him like a hawk.
Trust you to prepare for your tangi. You wanted to lie next to Dad, near our grandparents in our whānau urupā so you wouldn’t be lonely. You made sure you laid out your list; to be on our marae, no finger foods, to follow the kaupapa, right down to who would take turns to carry your coffin, what clothes to dress you in. Your mahogany coffin purchased online, lying in wait in the shed. What music to be played at the urupā – Bob Marley to the end Bro. ‘Don’t worry about a thing, ‘cause every little thing, is going to be alright’. My dear sweet brother, it was a great send off, every little thing was alright. Ka pai.
Stella: What do you think is the most important message out of this story Tess?
Tess: Well George certainly was an independent man, an independent thinker, surrounded by loving whānau. I think what this story shows us is the diversity of Māori. George actually, although he was unwell, he worked out exactly what he wanted to have happen for him at the end of this life, particularly around his tangihanga. And so, he went and organised getting his coffin and he told the whānau what he wanted to eat and what music he wanted. And you know which ancestral land he wanted to be taken to and all of that kind of thing and who he wanted to lie next to. And this really shows that he was loving his whānau. He was preparing them for his dying, and he was assisting them in planning and putting things in place and I think that’s awesome.
Stella: So, what can health professionals learn from this story?
Tess: I think health professionals can really appreciate and understand that we are diverse. There are those amongst us who are very, very traditional. And George’s story really shows a wonderful blending of the traditional and the contemporary. Because for a lot of our Māori whānau we don’t have a need to organise our tangihanga because we know it’s going to be cared for, our tangi rituals have been there for hundreds of years, nothing’s changed, they’re still the same. And here we have a young man that’s actually able to make his own decisions and empower his whānau and I think if health professionals really understand and appreciate that actually we come in all shapes and sizes our whānau, and we have the traditional and we also have the diverse, and [so] just assist us and support us to achieve what we want at the end of our lives.