I have had a whānau… [Where] their father was unwell at home. [He was] being managed at home not to the standard that health professionals would want it to be, but they were managing it at home. And then he came into hospital because he developed too much fluid... in his lungs and in his heart so he had a bit of congestive heart failure. We gave him furosemide you know but he was already under hospice. So, the hospital went to ring the hospice nurse. Can’t get the doctors to give palliative or come in and direct what we want. You know what we need to do? We need to give him comfort… clear his chest first so that he can go home. In the end it was, ‘Well, he needs a bed at home.’ … the secondary care facility then saw hospice as an ability to get gear. But there was no talk about, ‘How are the family going to cope? Who's the one who’s going to be there all the time? How are we going to do [it]?’ So, I had to have those conversations. Secondary care just went, ‘Nah, call the hospice nurse.’ And oh, and, ‘She’s Māori, and this is a Māori service, they’ll get it sorted.’ And so, there’s that kind of [thing going on] and that’s what I meant by the 'institutionalised colonisation', [it] is still there because you’re sitting there going, ‘Oh you’re Māori so you do it.’
Well I took a bed in. They even lived in a little two-bedroom house where they had eight people living in there, there were whānau in the shed things like that. And I went in and said, ‘How is the bed going to help you? So, if you take that bed and his bed out [it won’t fit], he won’t sleep on it. So then why are we bringing a bed in? Oh, because the nurse at the hospital said you could have it? What’s going on? Like what do yous want?’ [Quoting whānau] ‘Oh we just want you to come and check that we’re doing everything alright?’ I said, ‘By your standard or by my standard?’ And one of them, his wife said, ‘By ours.’ Said, ‘Well that’s perfect. You tell me what you want me to do and I will tell you whether I can do it within the constraints of my nursing, the constraints of… the organisation I work with. And if I can’t I’ll try and get someone to do it for you.’ So, all they wanted to do was… to retain the control on how they you know, how they managed him at home, but also to have him in comfort…
They took it up, the [bed] and it was in the shed and one of the kids slept on it. So, I said, ‘Oh well leave it there. If it’s an extra bed for yous leave it there. You know we’ll get it back when everything goes [back to the services].’