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For Whānau Manaaki Family Caregivers
- Kete Aronui Maori Palliative Care A site for whānau manaaki, family caregivers
- Te Ipu Aronui Road Map
- Kete Tuauri
- Spirituality and wairua
- Karakia definition
- Diverse spiritual faiths and practices
- Spiritual safety and protection
- Spiritual care within hospitals, hospices and aged residential care services
- The power of karakia
- Spiritual support at time of death
- What if you do not know your spiritual care customs?
- Kete Aronui - rongoā
- Rongoā healing
- Forms of rongoā
- Use of rongoā rākau (natural plant medicines) is increasing
- Are you thinking about using rongoā?
- Include your rongoā healer in your health care team
- Self-care
- Te Ipu Aronui’s Kete Tuauri
- Staying with the tūpāpaku
- Karakia before and after death
- Preparing the tūpāpaku (body)
- Caring for the tūpāpaku (body) after death
- Planning and preparation for care following death
- Whakanoa (spiritual clearing of environment process)
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For Health Professionals
- Whanaungatanga - Establishing a relationship
- Connections take time
- First contact - building a rapport
- Rich histories and lifestyles
- Building trusting relationships
- Whānau systems of care Care roles within whānau
- Geographical location and end of life care
- Challenges whānau face
- Cultural safety - more effective than cultural competency
- Cultural safety - a definition
- Māori health and palliative care workforce
- Strengthening Māori cultural safety
- Caring for Māori health professionals
- Tikanga
- Ngākau pono Working with a sincere heart
- Caring with aroha
- Self-care
- Te Reo Māori The Māori language
- New Zealand history
- Kaumātua tino rangatiratanga Independence, authority
- Places kaumātua are cared for
- Dying in a healthcare setting
- Living in a ‘home’
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Pae Herenga Research Background
- Healthcare providers
- Palliative care resources
- Support services
- Grief and loss support
- Research
- Tangihanga and funerals
- Links and Information for Health Professionals
- Te Reo Māori Resources
- Cultural Safety
- New Zealand History
- Pūrākau
- Advanced Care Planning (ACP)
- Medicines Directory
- Publications
- Māori Data Sovereignty
- Covid 19 Study
It can take a village to care for someone who is dying
Caregiving of hinengaro (mind), tinana (body) and wairua (spirit) is a big job and it requires a lot of fortitude to do this over months and sometimes years (as with some cancers and life-limiting conditions such as diabetes or dementia). Providing this level of care, especially if the illness the kaumātua has requires around-the-clock care, or they are at end-stage, can be tiring. Often there may be only one or two caregivers available to help. With globalisation many whānau are now living in Australia and other parts of the world. In addition, not all whānau have the human resources, knowledge, skills, support and resources needed to carry out 24/7 wrap-around, end of life care. Many whānau caregivers were role models and are sadly no longer alive, and therefore cannot pass on their time-honoured care customs.
Recommendations
Be aware that today the stereotype of the large family in many instances is a myth in today's world and many whānau will need sustainable support put in place, especially for whānau with fewer members/carers, if they want it.
For health and palliative care professionals, we recommend:
- Ensure that kaumātua who do not have whānau available to care for them or the family may lack the necessary resources to carry out end of life care have all the support they can access from the services that are available.