-
For Whānau Manaaki Family Caregivers
- Kete Aronui Maori Palliative Care A site for whānau manaaki, family caregivers
- Te Ipu Aronui Road Map
- Kete Tuauri
- Spirituality and wairua
- Karakia definition
- Diverse spiritual faiths and practices
- Spiritual safety and protection
- Spiritual care within hospitals, hospices and aged residential care services
- The power of karakia
- Spiritual support at time of death
- What if you do not know your spiritual care customs?
- Kete Aronui - rongoā
- Rongoā healing
- Forms of rongoā
- Use of rongoā rākau (natural plant medicines) is increasing
- Are you thinking about using rongoā?
- Include your rongoā healer in your health care team
- Self-care
- Te Ipu Aronui’s Kete Tuauri
- Staying with the tūpāpaku
- Karakia before and after death
- Preparing the tūpāpaku (body)
- Caring for the tūpāpaku (body) after death
- Planning and preparation for care following death
- Whakanoa (spiritual clearing of environment process)
-
For Health Professionals
- Whanaungatanga - Establishing a relationship
- Connections take time
- First contact - building a rapport
- Rich histories and lifestyles
- Building trusting relationships
- Whānau systems of care Care roles within whānau
- Geographical location and end of life care
- Challenges whānau face
- Cultural safety - more effective than cultural competency
- Cultural safety - a definition
- Māori health and palliative care workforce
- Strengthening Māori cultural safety
- Caring for Māori health professionals
- Tikanga
- Ngākau pono Working with a sincere heart
- Caring with aroha
- Self-care
- Te Reo Māori The Māori language
- New Zealand history
- Kaumātua tino rangatiratanga Independence, authority
- Places kaumātua are cared for
- Dying in a healthcare setting
- Living in a ‘home’
-
Pae Herenga Research Background
- Healthcare providers
- Palliative care resources
- Support services
- Grief and loss support
- Research
- Tangihanga and funerals
- Links and Information for Health Professionals
- Te Reo Māori Resources
- Cultural Safety
- New Zealand History
- Pūrākau
- Advanced Care Planning (ACP)
- Medicines Directory
- Publications
- Māori Data Sovereignty
- Covid 19 Study
Pae Herenga Study
Digital Storytelling Workshops
Sixteen Pae Herenga participants had an opportunity to take part in producing a personalised digital story (short video) about their caregiving experiences.
Associate Professor Shuchi Kothari, Associate Professor Sarina Pearson and Mr Peter Simpson ran the workshops with the support of Dr Lisa Williams and a group of dedicated students from the University of Auckland.
Story telling
Associate Professor Shuchi Kothari, Associate Professor Sarina Pearson, Mr. Peter Simpson
We would like to thank Dr. Tess Moeke-Maxwell and the Pae Herenga team for the opportunity to collaborate on this project. For the last five years we have been working with Professor Merryn Gott, Dr. Lisa Williams and the Te Ārai: Palliative Care and End of Life Research Group at the University of Auckland School of Nursing. Designing and facilitating digital storytelling workshops during which participants reflect upon their own experiences of caregiving, grieving, and healing has been an enriching and spiritually moving experience for us. Not only have we been part of interdisciplinary research that addresses how we live and die, but we have had the amazing fortune to meet people who have made a difference in their whānau and communities.
Pilot Digital Storytelling Workshop
This website also includes the stories from the digital storytelling pilot workshop (2015).
Digital Storytelling Project Producers were Associate Professor Shuchi Kothari, ([email protected]) Associate Professor Sarina Pearson ([email protected]) and Mr. Peter Simpson ([email protected])
Eight Māori and whānau supporters crafted digital stories about topics related to end of life caregiving, bereavement and tangihanga. Over the course of a weekend, they worked with filmmakers to make these 3-5-minute videos that includes their personal stories told by them in their own words. Researchers Tess Moeke-Maxwell and Stella Black offer their reflective commentary after each video to provide insight into some important themes highlighted in each story (see digital stories on Whanongo Pono Values section under Whānau Manaaki Welcome).
Pilot digital storytelling workshop participants featured in this photo: Eliza Carter, Manaaki Poto, Devi-Ann Hall, Stella Black, Kiripai Kaka, Bobbi/Jonine Nepia, Brent/Red Henare.
Dr Lisa Williams
Lisa Williams is a research fellow in the School of Nursing. Her research interests are palliative care and end of life and the dissemination of research findings using the creative arts.
Professor Merryn Gott
Professor Merryn Gott is the director of Te Ārai Palliative Care and End of Life Research Group (https://tearairesearchgroup.org/). Merryn set up the Te Ārai research group in collaboration with her colleagues in 2014 (most of us are from the School of Nursing, University of Auckland).
Associate Professor Shuchi Kothari, Associate Professor Sarina Pearson, Mr. Peter Simpson
We would like to thank Tess Moeke-Maxwell and the Pae Herenga project for the opportunity to collaborate on this project. For the last five years we have been working with Professor Merryn Gott, Dr. Lisa Williams and the Te Ārai: Palliative Care and End of Life Research Group at the University of Auckland School of Nursing. Designing and facilitating digital storytelling workshops during which participants reflect upon their own experiences of caregiving, grieving, and healing has been an enriching and spiritually moving experience for us. Not only have we been part of interdisciplinary research that addresses how we live and die but we have had to amazing fortune to meet people who have made a difference in their families and communities.
Digital Storytelling Project Producers: A/P Shuchi Kothari, ([email protected]) A/P Sarina Pearson ([email protected]), Mr. Peter Simpson ([email protected])
Tess Huia Moeke-Maxwell
Kia ora, my name is Tess Huia Moeke-Maxwell (Ngāi Tai ki Tāmaki Makaurau & Ngāti Porou). Following on from my post-doctoral investigation (2009 - 2012) on Māori end of life experiences, I’ve worked in the School of Nursing, University of Auckland, as a Research Fellow and a founding member of the Te Ārai Palliative Care and End of Life Research Group. In 2017 I was awarded a project grant from the Health Research Council of New Zealand to lead the Pae Herenga study. The Kāhui Kaumātua Rōpū for Te Ārai asked me to lead a study to gather information about the traditional care customs whānau manaaki (family carers) use to care for their kaumātua (older person) at the end of their life, and to share this with Māori whānau who will be called on to provide care to their kaumātua. We also wanted to share this information with Hospice New Zealand, palliative care professionals as well as health and social care professionals more broadly. We are grateful to Hospice NZ for supporting this study since its inception.
The Pae Herenga study is important as there is an anticipated rise in older Māori deaths over the next thirty years; we need to prepare ourselves for the privilege of caring for our kaumātua. On behalf of my team, I would like to thank each and every person and whānau who took part in the Pae Herenga study. Without everyone’s support we would not have been able to complete this piece of work.
He rau ringa oti ai.
Many hands make light work.